Labs are all looking good. We're now in the final stage of the steroid wean. We'll check how Sir Oliver is doing next week and then again 2 weeks later at clinic. Fingers are crossed for all to go smoothly. I'm starting to get anxious again about rejection. I'll definitely be freaking out for a few months after he comes off steroids (assuming he does). Nevertheless this is still the right thing to do. While keeping Sir Oliver happy is monumentally important, reducing Jaisal's risk for diabetes, osteoporosis, hypertension, cataracts, etc. due to the steroids is important too.
Jaisal's prograf level also has been running a little high lately, so we've been reducing that ever so slightly in the last few weeks.
My hopes for the rest of the year in terms of his meds are that we:
1. Stay off the steroids.
2. Bring his target prograf level down to 6-8 (we're at 8-10 now).
3. Take him off his cellcept (MMF).
That would mean by his second year transplanniversary he'd be on just one immune suppressant (which is where he should have been at the end of year one). If we're able to do all this, I think we'll need to continue to get labs at least on a monthly basis until the end of the year. Not ideal, but again a necessary evil.
2 comments:
Do you think they will take him off MMF? It's usually hard to get off of that one unless you switch to sirolimus or everolimus.
I do. It's protocol at Lurie's for stable liver transplant patients to get down to just tacro. We're just hopeful that Jaisal's rejection was a one-time affair and not something that keeps him from getting down to just tacro. What's the medication regimen for heart transplants?
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